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Data Choices

National Data Opt Out Programme

National data opt-out programme

Information about your health and care helps us improve you individual care, speeds up diagnosis, plan your local services and research new treatments. In May 2018, strict rules about this data can and cannot be used strengthened. The NHS is committed to keeping patient information safe and always being clear about how it is used.

By 2020 all health and care organisations are required to be compliant with the national data opt-out policy, where confidential patient information is use for research and planning purposes. NHS Digital and Public Health England are already compliant and are applying national data opt-outs.

You can choose whether your confidential patient information is used for research and planning. You can view or change your national data opt-out choice at any time by using the online service at: https://www.nhs.uk/your-nhs-data-matters/

You can aslo download the 'Your data matters' leaflet here: https://digital.nhs.uk/services/national-data-opt-out/supporting-patients-information-and-resources 

Your Data Matters to the NHS

Information about your health and care helps us to improve your individual care, speed up diagnosis, plan your local services and research new treatments. The NHS is committed to keeping patient information safe and always being clear about how it is used.

How your data is used

Information about your individual care such as treatment and diagnoses is collected about you whenever you use health and care services. It is also used to help us and other organisations for research and planning such as research into new treatments, deciding where to put GP clinics and planning for the number of doctors and nurses in your local hospital.  It is only used in this way when there is a clear legal basis to use the information to help improve health and care for you, your family and future generations.

Wherever possible we try to use data that does not identify you, but sometimes it is necessary to use your confidential patient information.

You have a choice

You do not need to do anything if you are happy about how your information is used. If you do not want your confidential patient information to be used for research and planning, you can choose to opt out securely online or through a telephone service. You can change your mind about your choice at any time.

Will choosing this opt-out affect your care and treatment?

No, choosing to opt out will not affect how information is used to support your care and treatment. You will still be invited for screening services, such as screenings for bowel cancer.

What do you need to do?

If you are happy for your confidential patient information to be used for research and planning, you do not need to do anything.

To find out more about the benefits of data sharing, how data is protected, or to make/change your opt-out choice visit www.nhs.uk/your-nhs-data-matters

Download a copy of the patient leaflet



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